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Navigating the ethical maze in disability research: ethical contestations in an African context

Navigating the ethical maze in disability research: ethical contestations in an African context

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dc.contributor.author Ephraim Lemmy Nuwagaba
dc.contributor.author Peter Rule
dc.date.accessioned 2021-01-10T11:56:00Z
dc.date.available 2021-01-10T11:56:00Z
dc.date.issued 2015
dc.identifier.issn 09687599
dc.identifier.issn 13600508
dc.identifier.uri https://combine.alvar.ug/handle/1/49347
dc.description.abstract Despite changes in how disability is viewed, ethical requirements for disability research have hardly changed. Some ethical clearance procedures, processes and practices still consider persons with disabilities as not able, creating unease among researchers and research participants with disabilities themselves. This paper considers five ethical contestations arising from research in the area of disability in an African context: positionality, vulnerability, signed consent, anonymity, and research committee composition. We argue that ethical requirements in practice are still largely based on a medical model of disability and propose that culturally sensitive social and human rights models should influence disability research ethics.
dc.publisher Informa UK Limited
dc.relation.ispartof Disability & Society
dc.title Navigating the ethical maze in disability research: ethical contestations in an African context
dc.type journal article
dc.identifier.doi 10.1080/09687599.2014.998333
dc.identifier.mag 2140518374
dc.identifier.lens 156-801-841-654-349
dc.identifier.volume 30
dc.identifier.issue 2
dc.identifier.spage 255
dc.identifier.epage 269
dc.subject.lens-fields Research ethics
dc.subject.lens-fields Psychology
dc.subject.lens-fields Human rights
dc.subject.lens-fields Medical model of disability
dc.subject.lens-fields Anonymity
dc.subject.lens-fields Vulnerability
dc.subject.lens-fields Culturally sensitive
dc.subject.lens-fields Disability research
dc.subject.lens-fields Engineering ethics
dc.subject.lens-fields Inclusion (disability rights)
dc.subject.lens-fields Social psychology


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